Behind That White Picket Fence

When my daddy was sick and dying of pancreatic cancer in 2006, I learned a lot.

One thing I learned is that we never really know what someone is going through. I remember leaving my parents’ house one evening after spending time with them when he was sick. They lived in a traditional southern style home with a white picket fence. Yep, a white picket fence.

On the outside, everything appeared to be normal…quiet, peaceful. On the inside of that house, it was anything but normal. I remember thinking, “People driving by have no idea how sad things are inside my parents’ house right now.”

It made me think. It made me look at people differently.

As I drove out of their neighborhood that evening, I looked at each house I passed and wondered if everything was OK. I wondered if there was anyone else experiencing the sadness we were experiencing. Were the people in the corner house feeling OK? Was anyone lying in the floor of their house waiting for help? Were people crying around a dinner table because of illness or divorce? Were any of the neighbors having financial problems?

Have you ever been in a restaurant and received terrible service? It’s human nature for us to think, “What a lousy waiter.” But in reality, that waiter might be a great waiter who is going through a terrible time. We don’t know what kind of problems he may have at home. We don’t know if his wife or child might have a terminal illness. We don’t know if he can’t pay his bills. We don’t know if he is dying.

I remember when my daddy first started having symptoms in mid 2005. He was experiencing rapid, unexplained weight loss, which we attributed to the horrible hip pain he had been having. We had no idea it was pancreatic cancer, but we knew something was wrong.

At the same time, my maternal grandmother was in the early stages of dementia, and my mother was having to drive back and forth from the Mobile, Alabama, area to Birmingham, five hours each way, to get her evaluated and help get her settled in an assisted living facility. Daddy couldn’t go with her, because he wasn’t able to sit in the car for that long.

No one had any idea.

That September, right in the middle of all this, my husband’s beloved grandmother died. The funeral was in Mobile. The day before the funeral, my mother had to go back to Birmingham, to meet with medical professionals about my grandmother’s care and to get the house locked up. It couldn’t wait. On the same day, my daddy had to get an epidural for the hip pain. It was a terrible time for my husband’s family, and in a different way, a terrible time for my family.

My parents were very private people, so very few people knew what they were going through.

With Mother out of town, my daddy was incapacitated because of the epidural and his hip problems. He was in terrible pain. There was no way I could ask him to keep a two-yr-old during the funeral, and there was no way he or my mother could attend. They said prayers for my husband and his family, but their own issues were big…bigger than anyone outside the family knew.

I’m sure there were some people who thought they should have been there or that they should have kept our daughter while we went to the funeral, but again…you never know what someone else is going through. One person even mentioned it. I just thought, “Bless his heart…he has no idea.” My parents were dealing with two different major health crises in two different cities. Even though we didn’t know the extent of my daddy’s illness, we knew something was wrong. And my grandmother, well, that was just sad. My poor mother was exhausted from driving back and forth…taking care of people at both ends of the state. There was no way my parents could have done anything differently than what they did.

As very private people, my parents would not have wanted me to tell anyone what they were dealing with, but it was a very difficult time.

No one could have known.

When my daughter was starting first grade, we had a “meet the teacher” day. All the parents gathered in the classroom. The teacher announced she would need a room mother for the school year. My friend whose child was also in the class turned to me and said, “You should do that!”

Unbeknownst to her, my husband was scheduled for brain surgery that September. I said, “Oh, I can’t. My husband is having brain surgery soon.” She was horrified. She’d had no idea, because no matter what my family was going through, we had to continue putting one foot in front of the other. I had been living life as usual, but something big was looming over our family. Of course, I told her not to be horrified, because we hadn’t told a lot of people.

This past December, when my mother died, I kept it quiet for a while in Charlotte, because I needed to process it emotionally before dealing with it publicly. I remember going to a meeting at school in early January and running into a friend. I saw her and said, “I have something to tell you, and when I say it, I need you to not ask questions and immediately change the subject.” I didn’t want to cry in public, and I didn’t want to make a scene.

She handled it perfectly. I said, “My mother died at the end of December.” She did exactly as I asked and immediately asked me about something else. Yay! Lots of people would have thought it was strange behavior, but she knew what I needed. I needed to keep going.

That friend and I have known each other for ten years, and until I told her, she didn’t know what was going on with me.

We really never know, do we? Maybe we should take that into consideration when someone forgets to meet us somewhere or forgets to return a call. Maybe that terrible waiter just needs someone to be kind to him.

How many times have you had a friend tell you they were getting divorced, but you had no idea there was a problem in their marriage? I’ve had two friends surprise me with this news in just the past few years, and I actually consider myself to be a pretty darn perceptive person. These are friends I saw regularly at least a few times a month, and I had no clue anything was wrong.

Often, we keep our private lives just that…private.

I know that after my mother died, I dropped out of life for a month. I gave myself permission to stay home, sit in bed, and do nothing for a month. On February 1, I rejoined the living. During the month of January, lots of people still had no idea what was going on in my life. I was grieving my mother, but I wanted to do it privately.

So, as you go through your day, try to remember that lots of people are dealing with terrible things…every day…everywhere. It might be your neighbor who was just diagnosed with cancer. It might be your child’s teacher who has been cranky lately, because her husband lost his job. It might be your friend who hasn’t told you she’s having marital problems.

Often, there are things we do not know. Let’s try to give people the benefit of the doubt.

Our Marriage Survived My Husband’s Brain Surgery

When our daughter was six years old, in 2010, my husband had brain surgeries. Yes, plural…two operations that were nine days apart.

We got married in 2000, but prior to being married, we hadn’t lived in the same city. I was in Mobile, Alabama, and he was in Charlotte, North Carolina.

As soon as we were married, I moved to Charlotte into what is now “our house,” and I soon noticed he had “spells.” I didn’t know what they were, but he seemed to “lose time.”   He would suddenly start blinking hard, fidgeting, and mumbling…for 30 to 45 seconds.

I spoke with his doctor, who ran tests, and while she saw a small spot on the left temporal lobe of his brain, she wasn’t concerned.

He had a series of unexplained car accidents, always saying afterward that he didn’t remember what had happened. I knew we had to get some answers. I was angry. I wasn’t angry at him; I was angry that the doctor hadn’t addressed the problem. I called her, telling her we needed to see a doctor who could help us.

She finally referred him to a neurologist.

At the neurologist’s office, we explained everything to the doctor, who promptly told us, “He’s having petit mal seizures.” Five minutes into the appointment we had an answer.

More tests showed what appeared to be a benign tumor in the front part of his left temporal lobe.

After months of anti-seizure medications, his seizures weren’t under control. Surgery was recommended. First, he had an inpatient evaluation in June of 2010, meaning he was hooked up to external electrodes in an epilepsy ward to monitor brain activity. The hope was that he would have a seizure while there, and the epileptologist would garner useful information. After a week in the hospital, he finally had a seizure…a full-on gran mal seizure, and the doctor witnessed it.

Working with two neurosurgeons, the epileptologist scheduled surgery for that September. First, they opened his skull and placed electrodes and probes directly into and on the surface of his brain. Wires hung out of the incision while we waited for him to have another seizure, and after nine days, he did.

The second surgery was scheduled for a couple days later, and he had the affected parts of his brain removed…part of his temporal lobe, his amygdala, and his hippocampus. Afterward, he was in pain, but it soon became apparent he had very few lasting effects. His “naming center” was affected, so he has trouble recalling words or names, but the biggest loss was short term memory. It was tough at first, but we have a different normal now.

It’s hard to believe it has been eight years.

Our daughter was six years old. She had just started first grade, and while I don’t claim to be the most organized person in the world, I became even less so throughout this ordeal. God bless her first grade teachers for providing snacks, extra patience, and love.

My goal was to keep life as normal as possible for our daughter. She didn’t need to know how scary it was, and I wanted her life to continue as if nothing were going on.

I needed to be at the hospital every day, but I made it a point to take our daughter to school every morning, so things would seem “normal.” I would rush home after dropping her off and get a shower before spending the day at the hospital. Friends would pick her up after school, so at night, when I left the hospital I could pick her up from their houses.

Thank God for friends…people rallied to keep us going. People who lived near the hospital graciously offered to let me nap at their homes. People filled our refrigerator with meals. Family came in from out of town to help. Friends let us sleep at their houses when I was too tired to drive home.

Both operations went smoothly, and after a couple weeks in the hospital, he came home. It was a tough time for him because of the pain and memory issues.

On top of everything else, he was experiencing what the doctor referred to as “disinhibition,” a temporary effect of the surgery. It manifests in different ways, but his manifested in terrible language. Some people experience far worse types of disinhibition…they walk around naked, or become sexually promiscuous. The excessive bad language was embarrassing, but at least he wasn’t walking around naked or having sex with random strangers. Unfortunately, our daughter heard some words she didn’t need to know. Fortunately, the disinhibition didn’t last.

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Photo from December 22, 2010…two months after the surgeries.

Because of the seizures, he was not allowed to drive. This was a low point. He was angry.  He wanted to drive. It affected everything. I was trying to hold everything together, but on Christmas morning, I had forgotten to put his medications in his weekly container. He came into the kitchen, and when he realized his meds weren’t ready, he became angry. When I said I would get the meds, he said I was trying to control him. It was the brain surgery talking, and I knew it, but I’d had enough.

It angered me, and I said, “You know what? Manage your own damn medicine. I can PROMISE you I won’t touch it again.” And I never touched the meds again. He had to take control of his recovery at that point. I was tired. I was tired of his anger about not being able to drive, and I was tired of being the scapegoat. Frankly, I was just tired.

The next day, our daughter and I went to visit family in Alabama. I took all the car keys with me, because I knew he wanted to drive but legally couldn’t. He called asking where I’d hidden the keys, and I told him I had them with me. He got angry, and I hung up the phone, turning it off so he couldn’t call me for the rest of the day. The next day, he apologized.

I know it was frustrating to depend on other people for transportation. I’m sure he felt trapped. He had an unemployed friend who drove him where he needed to go for those months, which worked out nicely for both of them. But it wasn’t the same as driving.

Eventually, the day came that he could drive again. I joyfully handed him the keys.

He was happy.

He got in the car and drove away with a smile on his face, and immediately, things got better. The anger was gone.

We had survived the storm. Most importantly, he had survived brain surgery and was making a recovery. Our daughter had survived, and except for knowing a few more choice words, she was unscathed. Time had healed his physical wounds, but time also healed our marriage. Once he could drive again, we fell back into a happy place.

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Photo from March 2018

Sure, we’ve had challenges and had to make adjustments. My husband doesn’t like to travel and wants to be home more than he used to. His brain processes things differently. He gets headaches in overcrowded, loud places. He only likes to visit familiar places. He doesn’t mind that we continue to travel without him. I’ve told him before, “God put us together for a reason. Some women would be angry that you don’t want to go anywhere, and some would be afraid to go without you, so they would stay home and complain.” I’m not angry, and I’m not afraid. Because he doesn’t enjoy being on the go, we spend quality time together at home or familiar places.

A year or so ago, our now-14-yr-old daughter and I were talking about the brain surgery experience, and she asked, “Could Daddy have died?” I responded, “Yes. He could have died. You didn’t know that?” She said, “No.” I smiled and said, “Well, then I did my job. I didn’t want you to know.”

He turns 52 today, and we have settled into our new normal…lots of repetitive conversations and lots of reminder notes. It would seem strange to a lot of people, but it’s our normal…and thankfully, that doesn’t include seizures anymore.

Happy Birthday, Cary!

She’s Growing Up, But She’ll Always Be My Baby

My little girl isn’t so little anymore. In fact, she’s the age at which she would be mortified if she knew I’m writing this. But she doesn’t know. Ignorance is bliss.

Right now, she’s upstairs with a friend getting ready for her last middle school dance. She’s finishing up eighth grade. Her school has two middle school dances a year, one in the fall and one in spring.

It’s hard for me to believe this is her last middle school dance. Truly, it seems like just a few months ago she was excited about her first middle school dance…in sixth grade. Afterward, she and all her friends could hardly wait to tell me how many boys asked them to dance! But it has been two years. Wow. She’s not even excited about this one. These eighth graders have one foot in middle school and one foot in high school.

As part of their upcoming eighth grade moving up ceremony (graduation), the school had parents send in pictures of the kids from kindergarten. Since my daughter started at the school in transitional kindergarten when she was four, I used that picture instead. She looks so sweet and so unjaded.

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September 2008, age 4 (almost 5!)

She started transitional kindergarten about six weeks before her fifth birthday. I remember that first day of school like it was yesterday. I remember watching her get out of the car in carpool with her tote bag and walk up the sidewalk by herself. I remember trying not to cry.

Today, when I turned in the picture for them to use for the ceremony, I told the middle school administrative assistant how I had to convince my daughter to wear a bow in her hair on picture day in transitional kindergarten. My child was the little girl who at 18 months declared, “Ruffles are for babies.” She has always had very definite ideas, and she sticks to her guns. When she was two years old, her pediatrician declared her to be a “classic strong-willed child,” telling me, “it will drive you crazy, but it will serve her well.” But on picture day in TK, I was able to convince her to wear a bow in her hair. I told her she didn’t have to wear it all day…just till after pictures. I reminded her that one of her friends regularly wore bows as big as her head…we are in the south, after all. When I picked her up after school on picture day that year, she didn’t have the bow in her hair, but she assured me she wore it for the picture.

I look at that picture and remember that sweet little girl who thought her mommy was the best mommy on earth and her daddy was the best daddy on earth. She thought we knew everything and could do anything.

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December 2007, age 4

Now, at age 14, she knows we don’t know everything, and she knows we can’t do everything. She’s more jaded than she was at four, because she has more life experience. She sees the world isn’t the perfect place she thought it was then. She knows the agony of defeat. She knows what it feels like to get a less than stellar grade. She knows injuries can end a sports season. She knows some people don’t have places to live. She knows there is no Santa Claus. She knows more about brain surgery than she should, because she watched her daddy suffer through it. She knows what it’s like to lose a grandmother. She knows what cancer looks like, since she has watched my friend suffer with it. She knows everybody isn’t nice all the time. She knows some friendships aren’t forever.

But as much as that life experience has jaded her a little, it has also made her appreciate the great things about life. She knows she goes to a great school in a fun city, and she’s fortunate to live in the United States of America. While she hates the agony of defeat, she loves the thrill of victory, and she knows it takes hard work, a good attitude, and confidence. She knows what it feels like to make an A+ and how great it made her feel when her history teacher told her he was impressed with the essay she had worked hard on. She knows there is a spirit of Christmas. She knows her daddy survived brain surgery. She knows sometimes kindness comes from  unexpected places. She knows most people are nice, and sometimes, friends we thought were gone come back around.

She knows that while parents can be embarrassing, we love her unconditionally. She knows we want her to live a good life in her own way. She knows experiences are far more valuable than things. She knows people may be able to take things, but they can’t take memories. She knows if she isn’t feeling well, her daddy and I will try to make her feel better…physically or emotionally. She knows we support her, but sometimes she has to be her own advocate.

As she finishes up middle school and prepares for high school, we continue to be her biggest supporters. We continue to tell her we love her every single day. We cheer her on at sporting events. We listen to her. We spend time with her and her friends. We read over her essays before she turns them in. We show her the world is full of different cultures and special people. We become her audience when she needs to practice a presentation. When she doesn’t feel well, we wish we could fix it. We remind her God will take care of us.

Tonight I will drop her off at her last middle school dance. The eighth grade girls don’t seem excited about it, but they’ll be glad they went. Like I said, they have one foot in middle school and one foot in high school.

And just when I think she is spreading her wings and flying away too fast, she surprises me. Last night, my husband was out of town, so our daughter crawled up into bed with me to watch TV for a little while. She cuddled up next to me, wrapped her arms around me, and said, “You’re the best mom in the whole world.” She cuddled for little while, and she said it several times, reminding me of when she was four years old and thought I knew everything. While I make her hug me once a day, those impromptu moments are hard to beat.

Yes, I miss that little four-yr-old who didn’t want to wear hairbows, dresses, or tights with her dance leotard. I miss that little four-yr-old who was so sweet and innocent. I miss that four-yr-old who thought Mommy and Daddy were the greatest people ever. But I love the big person she is becoming. I love that she wants good things for people. I love that she is already talking about college but loves hanging out with me…sometimes. I love that she loves college football as much as I do…and knows way more about it than I do. I love that she has good friends. I love that she is athletic. I love that she loves rollercoasters. I love that she enjoys travel. I love that she becomes more independent every day. I love that she has an appreciation for music. I love that she discovered a passion for art this year in school. I love that she is compassionate. I love that she is outgoing. I love that we have real conversations. I love that she expresses her opinions. I love when I do something for her, and she says, “Thank you, Mama.” I love this 14-yr-old.

Every night when I go upstairs to kiss her goodnight and tell her to “go to sleep soon,” I sit on the loveseat in her room and have a quick chat with her to reconnect one more time. If anything’s bothering her, she will usually tell me then. If she’s upset about something, it can be a long conversation. But if all is well, after we talk a little while, I stand up and walk to the door, turning around to say, “Goodnight! I love you! You’re my favorite!”

And when I see her walk across the stage at the eighth grade moving up ceremony in two weeks, I will think of that little four-yr-old who made her mommy happy by keeping that bow in her hair till after pictures.

My mother used to say that her goal as a mother was to raise compassionate, independent people who contribute to society. That’s my goal too.

So far, so good.

She’ll always be my baby. She’s my favorite.

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Alabama Theatre and Faye Dunaway

My daddy had a great sense of humor. He also loved wordplay. He was a great storyteller. He had vivid memories of his childhood, and we loved hearing his stories.

When I was a teenager, something came up in a family conversation about Faye Dunaway, the Academy Award-winning actress. Daddy said, “Faye Dunaway went to my school.” I must have looked at him like he had fourteen eyes, because he reiterated that she had gone to his elementary school in Florida.

Because he was a jokester, I thought, “Oh, I get it. He went to school with someone named Faye Dunaway, but not the real Faye Dunaway.” For YEARS, I thought it was a joke. I don’t remember talking about it a lot…just that once or maybe twice.

Years later, when I was in my late 20s, I was reading People Magazine one evening after work, and there was an article about Faye Dunaway. I started reading it, and there, in the second paragraph, it said she went to school in Bascom, Florida. That’s where Daddy went to elementary school! I picked up the phone and called him.

I said to him, “I’m reading an article about Faye Dunaway, and she really did go to school in Bascom!” He responded, “I’ve been saying that for years.” “Well, I know, Daddy, but I always thought you were kidding, saying someone NAMED Faye Dunaway went to your school.” We shared a good laugh at the confusion.

By the same token, I had some confusion with something Mother said for years too.

Mother grew up in the Birmingham, Alabama, area. When I was a little girl, she told me she used to go to the Alabama Theatre in downtown Birmingham for the Mickey Mouse Club on Saturdays. She made a big deal in telling me about the giant organ that would rise up out of the floor of the theatre.

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Interior of Alabama Theatre. Photo from Alabamatheatre.com. The theatre was home to the country’s largest Saturday morning Mickey Mouse Club at one time. It was also the first air-conditioned public building in Birmingham.

I didn’t tell Mother at the time, but when she said that about the organ rising from the floor, I thought she must have been mistaken. I honestly thought her memory must have been playing tricks on her, because who ever heard of an organ rising up out of the floor?

It just didn’t make sense to me, but I didn’t argue with her. I just thought her little girl brain had been tricked into thinking the organ came out of the floor…some sort of optical illusion or something.

Then, in my late 20s, I read Fannie Flagg’s Fried Green Tomatoes at the Whistlestop Cafe. Well, since Fannie Flagg is from Alabama, I’m guessing she must have visited the Alabama Theatre, because in the book, she mentions the organ. She mentions how the organ rises up from the floor!

So Mother’s memory wasn’t playing tricks on her, after all! I promptly called her to tell her what I’d read. She said, “I’ve been telling you about that organ for years!” I confessed, “Well, I know, Mother, but I thought your memory was playing tricks on you!” We had a good laugh over it.

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Photo of Big Bertha, The Mighty Wurlitzer, from Alabamatheatre.com

To see more about the Alabama Theatre and the organ they call Big Bertha, The Mighty Wurlitzer, click here. The theatre has an interesting history, and the organ was one of only 25 of its type ever built.

It makes me wonder what I’ve told my daughter that she questions. Maybe she keeps it to herself that she thinks I’m talking out of my mind when I talk about a childhood memory.

Let’s take, for example, the time I caught a really big catfish in the neighborhood lake. When I was a little girl, we would go cane-pole fishing down at the lake at the bottom of the hill in our neighborhood. Sometimes we would catch catfish and take them home for Mother to clean them and fry them up, and sometimes, we had no luck at all. One time, I caught the record catfish…a record for us, anyway. It might have been five pounds. As soon as I caught it, we took it home. My brother and I had catfish for dinner that night.

Maybe my daughter thinks I was confused about how big that fish was.

Maybe she thinks I’m crazy when I tell her otters lived in that neighborhood pond. They did. I saw them from the school bus window one morning. Everybody had been talking about them for weeks, and finally, I saw them surface.

Maybe my daughter thinks I saw a dog swimming through the pond and thought it was an otter.

I didn’t go to school with anybody famous. None of my friends have become famous (yet), so I don’t have any stories to tell my child about “I knew him when.” I don’t remember anything like The Mighty Wurlitzer from my childhood, so all I have is the pond with the catfish and the otter.

I haven’t even been to see The Mighty Wurlitzer rise up out of the floor at the Alabama Theater. But in December, I plan to make a trip to Birmingham. Every year, the Alabama Theater shows classic holiday movies on the big screen. I’ll go, and when I see The Mighty Wurlitzer come up out of the floor, I’ll think of my mother and laugh about how I thought she was confused…just like I think of my daddy every time I think of that famous photo of Faye Dunaway (click here to see the iconic photo taken the morning after she won the Academy Award) at the Beverly Hills Hotel.