Category / pancreatic cancer

by Kelly Mattei

Don’t Pick Up the Shoes

Don’t pick up the shoes.

I saw a Facebook post today on a page called Alabama News and Comment. It’s a page from the news division of Alabama’s Radio Station, 101.9 Fox-FM. It appears to be a station out of Birmingham. Don’t ask me how I got to the page, because I have no idea. It was one of many squirrels my brain chased today. And this time, I ended up on Alabama News and Comment, reading a piece about a woman picking up her husband’s shoes. You can see it on Facebook here.

My husband picks up his own shoes, so I don’t think I have ever had to pick them up for him, but it made me think of my parents.

My parents were married for 45 years before my Daddy died. He was young, just 68, and died of pancreatic cancer. Many times, though, during his retirement years, he would take off his shoes in the living room and leave them underneath the coffee table. I’m guessing he usually carried his own shoes to the closet, but it was something I never gave any attention at the time.

And then, in 2006, Daddy died.

We did what families do. We supported each other for a few days, and then my little family returned to Charlotte to resume our lives. We settled back into real life. About a month later, I decided we needed to go visit Mother; she’d had time to rest and recuperate after months of caring for Daddy, and I thought she needed company.

Upon arrival at my parents’ home, I saw Mother standing outside waiting for us, but I didn’t see Daddy. Of course, I didn’t see him, because he had passed away a month before, but his absence hit me hard. I got out of the car with tears streaming down my face, and Mother said, “I should have warned you how difficult your first visit back would be…your first visit without him here.” She knew, because she had lost her own Daddy. It had never occurred to me how the absence of Daddy would take my breath away. But it did.

We all went inside and sat down in the living room, and that’s when I saw Daddy’s shoes under the coffee table. I looked at them, and I looked at Mother. Her eyes met mine. I didn’t even have to say anything. She simply said, “I can’t move them.” I cried again, but I understood. Seeing those shoes where Daddy left them likely made her feel a little like he was still there. It was a small way of tricking her brain into feeling like Daddy was still there…a comfort. As I read the piece on Facebook today, my brain went straight to that time, and I thought, “One day you might want to see his shoes in the living room.”

Life is like that. Sometimes the things we never think we will miss are the very things we miss…or even the things we find comfort in. When our daughter was a toddler and didn’t sleep well, many times I would have to go upstairs and lie down with her. My husband and I shared a doctor at the time (a mistake I won’t make again in this lifetime), and when he was at the doctor, he mentioned it in passing to “our” doctor. The next time I was there, she opted to lecture me about how bad that was for me and for our daughter. It angered me greatly, because frankly, I thought it was none of her business, and soon thereafter, I found another doctor. What did I know that the doctor didn’t know? I knew we all parent differently, and I knew myself far better than she knew me. I knew, in my infinite wisdom, that one day, I would be sad when my daughter didn’t want me around as much. Was it a little inconvenient for me to spend a half hour upstairs helping our daughter get to sleep? Yes, but I loved every minute. And guess what…she’s a freshman in college now who doesn’t need me to help her get to sleep. *Many times, I have wondered what kind of communication that doctor has with her own children…if she has the same great relationship with hers that I have with mine. I actually feel sorry for her and for her children. I know mine trusts me, and some of that trust might just go back to those nights she needed me to be there while she fell asleep.*

If my daddy’s death taught me anything, it taught me that life is not a dress rehearsal. We have to live now and enjoy the little things. When our daughter was a toddler, I would pick her up and carry her in my arms any time she wanted. My friend, Jennifer, and I believed (since we had only children) we should do that, because one day we wouldn’t get to carry them anymore. We wouldn’t know when it was the last time, so we did it every time. No, I don’t remember the last time I carried her, but I know I carried her on my back multiple times after she became too heavy to carry in my arms. And if she asked me to carry her today (she’s 19), I would. You can bet on that.

And as much as it annoys me that my husband can’t resist the urge to open the curtains on the window on my side of the bed, I know that, if something happened to him, I’d likely miss having to go close those curtains when my side of the room starts to heat up from the sunlight.

Enjoy the little things…even the little annoyances.

by Kelly Mattei

Writing My Way Through Tough Times

Writing my way through tough times.

If we live long enough, we all experience heartache at some time or another. It might be in the form of a breakup, or it might be in the loss of a loved one. I experienced a few breakups as I grew up, just like most everyone else, but my first big, real heartache was when my daddy was diagnosed with and eventually died of pancreatic cancer in 2006.

He was officially diagnosed in February of that year, and he died on October 2 of the same year. Today is the 16th anniversary of his death…a tough day for me, and a reminder of the heartache I managed to survive. I suffered. It was the most painful thing I had ever experienced…losing my daddy. I was the mother of a toddler, but I was afraid I was losing my mind. I made lots of plans, because I thought I needed to stay busy. I ran myself ragged. But I learned.

When my mother fell ill 11 years later, my friend, Angela, who has also lost her father, said, “Get ready. It’s going to be tough when you lose her.” I vividly remember turning to her, saying, “It’s going to be tough, for sure, but I feel like I learned something when Daddy died. I feel like I developed some coping skills.” And after Mother passed, I learned I had, in fact, developed some coping skills. I had learned not to run from it. I had learned from my experience with Daddy’s death that I needed to just drop out of the world for a little while and process it. So that’s what I did after Mother died. I have written about it before. I literally gave myself permission to recover quietly and cancelled all plans and went to bed for a month. Don’t get me wrong. I was functional. But I didn’t feel like being social, so I wasn’t. I did what I needed to do for our daughter, but for the most part, I stayed home. And after a month, I “pulled up my bootstraps” and rejoined the living.

For Christmas that year, I had received a gift from a friend. It was a book called My Future Listography: All I Hope to do in Lists. When I received the gift, I thought it was cool, but when Mother died five days after Christmas, the book took on more meaning. It’s a journal, of sorts, and it’s part of a series of Listography books. Each one contains lists to fill in, and this one is full of lists about the future. Examples of some of the lists: What countries do you want to visit? What films do you want to see? What fictional characters would you like to hang out with? But after Mother died, the book became good therapy for me. Sounds crazy, but it gave me things to think about in the future. It made me see past the state of gloom I was in and look to the future. It really helped me move through the grief. It helped me realize that the act of putting my thoughts out there could help me heal. To order My Future Listography, click here.

And because of that, I started my blog. Writing things down…or typing them, in the case of the blog…was therapeutic! My Future Listography had brought me through the initial trauma of losing my mother, and writing the blog helpted me continue to keep putting one foot in front of the other.

Since losing my Mother on December 30, 2017, I have given copies of My Future Listography to lots of friends when they have been going through tough times…breakups, death of a loved one, or even new empty-nesters who are having a hard time. Sometimes, they look at me like it’s a weird gift, and maybe it is…but several times, people have called me later to tell me how much it helped them keep putting one foot in front of the other…keep looking toward the future. We know time helps with heartache, but knowing there is life ahead of the heartache can help too. When someone is in the middle of grief or heartache, they aren’t necessarily thinking about the good things ahead, but this journal can help them see what the future might look like.

I have a friend who went through a terrible breakup two years ago, and I gave her a copy after the relationship ended. There’s something about a relationship ending that can seem particularly dismal. It can feel like everything you believed about someone was wrong…a lie. Later, we realize that’s not always the case; sometimes, there are just extenuating circumstances that cause relationships to end. And as with my friend, sometimes we need to be reminded that there is a bright future ahead. She called me months after the breakup and told me the journal of lists had helped her. Now, I keep a few handy to give as gifts, because you never know when someone you love is going to experience something bad.

Sometimes, we just need a reminder that better things lie ahead.

by Kelly Mattei

A Visit.

A Visit.

This past weekend, I took a whirlwind trip to a college football game. When I say whirlwind trip, I mean I barely felt like my feet were on the ground between flights. But we crammed a lot of fun into a short stay. And yes, my team won.

On the return flight, I was the first to board. I always like to board as early as possible. I don’t know why…it’s just who I am. As the plane filled up, I noticed a gentleman boarding who reminded me of my daddy. He was tall with white hair…much like my daddy. I lost my daddy 15 years ago to pancreatic cancer, and on very rare occasions, I “see” him somewhere…I see someone who looks like him walking across a parking lot or in the background of photos. This particular gentleman ended up sitting in the row in front of me on the flight; it’s the first time I’ve been seated behind someone who reminds me of Daddy. If you’ve lost a loved one, you might know it’s interesting to see someone who resembles the person you’ve lost. I found myself looking at the back of his head a lot during the flight. It didn’t make me sad. Quite the opposite…it made me happy…made me feel a little comforted. It made me think Daddy was saying “hi” to me.

The flight was uneventful, and then we landed in Charlotte. As soon as we landed, the gentleman made a phone call. I don’t know if it was his wife or his daughter. I preferred to think it was his daughter, but it was probably his wife. I don’t know what had occurred, but he listened for a minute and then calmly responded with, “OK. You’re fine. Stop worrying about it. It’s over.” He had a calming voice, much like my daddy’s, and his southern accent sounded like Daddy’s too. He responded that way several times, “Let it go. It’s over.” I remember hearing my own dad say those very words to me many times in my life. When I was in college and I finished an exam that I thought didn’t go well, I would call him, and tell him. And he would always respond, very calmly, “Stop worrying about it. It’s over.” Or he might say, “Stop worrying about something you can’t change. It’s over now. You’re wasting your energy.” Even after a car accident, when I was trying to replay the events that led up to it, he would say, “Let it go. It’s over.” Seriously, hearing the gentleman on the phone last night really made me think of Daddy. If I had been worried about something at the time, I’d have thought Daddy was trying to send me a message. Maybe he was sending me a message about a future worry?

The gentleman ended his call with an “I love you,” and soon thereafter, we arrived at our gate. We all stood up to retrieve our carry-on bags from the overhead bins, and I found myself standing directly behind him while we waited to deplane. He and another gentleman started talking, and “the” gentleman revealed that he was traveling to Minneapolis. He said he had started his day in 87-degree weather, and when he arrived in Minneapolis, it would be 27 degrees. He also revealed that he enjoys traveling to Minneapolis and started talking about the food there. I don’t remember the particulars of everything he was saying about the food. I just remember that it reminded me of Daddy. When he traveled, he talked to people and learned about the city he visited. This gentleman was sharing little facts about the Swedish influence in Minneapolis, and he also revealed that everything he eats in Minneapolis is served with wild rice. Apparently, lots of wild rice is grown in the state of Minnesota…something I didn’t know before…and one of those facts Daddy would have picked up in his travels.

As weird as it sounds, I enjoyed the little bit of time that I felt like I was in the presence of my dad. I know it wasn’t Daddy. I’m not crazy. There’s just something a little reassuring about hearing a similar voice saying something Daddy would have said.

November is Pancreatic Cancer Awareness Month. If you’re familiar with pancreatic cancer because a family member or friend has it or had it, I’m sorry. It’s a terrible, deadly disease that gets very little research funding. If you’d like to make a donation to an organization that works to support those who have pancreatic cancer and their families, please consider donating to Pancreatic Cancer Action Network. Thursday, November 18, is World Pancreatic Cancer Day, and the organization will be hosting an online event, sharing the latest information on advances in research and treatment. You can see the Pancreatic Cancer Action Network website here. Please consider donating to this worthy cause.

And on November 18, please consider wearing purple in support of Pancreatic Cancer Awareness. I will wear purple in memory of my Daddy.

by Kelly Mattei

Saturday Morning Cartoons

Saturday morning cartoons.

Ahhh…the good old days…when Saturday morning meant eating cereal in my pajamas while seated on the floor in front of the console TV. Saturday morning cartoons were the best. Everybody I knew who was a child in the 70s watched. For whatever reason, those cartoons made quite an impression on us…so much so, that I often find myself making references to them as a 53-year-old!

Just today, in fact, I caught myself making a reference to a Saturday morning cartoon. I got my shower and got dressed. Keep in mind that every November, I observe Pancreatic Cancer Awareness Month, and since purple is the color for pancreatic cancer awareness, I try to wear it as much as possible. Sounds crazy, I know, and I don’t own as much purple clothing as I used to, but today, I put on some purple leggings with a cute, comfy tie-dye sweater. I then looked in the mirror and said aloud, “Grape Ape.”

When I was a kid in the 70s, The Great Grape Ape Show was one of the cartoons I loved. It featured a 40-foot tall purple ape who often uttered these words, “Grape Ape! Grape Ape!” My most vivid memory is of Grape Ape riding on the roof of his friend’s car after revving it up like a push toy. He was giant. He was purple. My leggings made me think of Grape Ape. You get the picture. You can see episodes of The Great Grape Ape Show on Amazon here.

During football games for my college team, I often can’t watch. My ego is apparently so healthy that I think my very presence actually has an influence on the outcome of the game. When someone asks why I don’t watch, I reply, “Because I’m Schleprock.” Lots of times, I get a puzzled look in return and have to explain that Schleprock was a character on The Pebbles and Bamm-Bamm Show, a spinoff of The Flintstones. Schleprock walked around in all gray clothing, often with a dark cloud (literally) over his head. He is known for having exceptionally bad luck, and when he is around, bad things tend to happen. So yes, if I think I am the catalyst of bad luck, I call myself “Schleprock.”

And since I’m talking about The Flintstones, I absolutely must mention “Yabba Dabba Doo!” Anyone who is familiar with the show knows those three words were used by Fred Flintstone when he was happy or excited…like when the whistle blew signaling the end of the work day at the quarry. I’ve used the exclamation many times over the years. First, every time I take a vitamin of any kind, I actually say, “Yabba Dabba Doo!” This is because, as a kid in the 70s, I took Flintstones vitamins, just like every other kid. In fact, when my brother was two or three, my mother and I were in one part of the house and heard him repeatedly saying, “Yabba Dabba Doo!” We ran to the kitchen to find him taking Flintstones vitamins and making the exclamation every time he took one. Good times! Fortunately, they contained no iron, so he was in no real danger. As an adult, I once noticed that an ice cream shop served Fruity Pebbles ice cream. I said to my then-10-yr-old daughter, “Yabba Dabba Doo!” She didn’t get it. Anyone who remembers The Flintstones knows they did the ads for Fruity Pebbles cereal. In fact, they’re still on the box. They’re also on the box for Cocoa Pebbles cereal.

Going from the prehistoric Flintstone family to modern times, everyone I know is aware of my fascination with midcentury modern architecture. Better yet, they know I love what’s referred to as Googie architecture, which was popular in the 1950s and 1960s. It’s futuristic and space age architecture…like The Jetsons cartoon. I used to have some dinnerware that had a space-age looking pattern on it, and I called that dinnerware my “Jetsons dishes.” Many times over the years, I’ve referred to building as Jetsons buildings. Come on…who hasn’t looked at the Theme Building at Los Angeles International Airport and thought about The Jetsons? Want to watch The Jetsons? You can rent episodes on Amazon here.

Anybody remember Hong Kong Phooey besides me? Sure, the name of that cartoon about a dog who is a private investigator is totally politically incorrect now, but back in the 70s, no one paid attention. The lead character was voiced by Scatman Crothers…what a great voice he had! The bumbling PI jumped into a filing cabinet to change from mere mortal into Hong Kong Phooey. Can I walk past a filing cabinet without thinking of the theme song? Hong Kong Phooey, number one super guy. Hong Kong Phooey, quicker than the human eye. He’s got style, a groovy style, and a car that just won’t stop. When the going gets rough, he’s super tough, with a Hong Kong Phooey chop! (Hi-ya!) Like I said, it’s not exactly politically correct. But mention the words “private eye” to me, and all I can think about is Hong Kong Phooey.

But by far, the Saturday morning cartoon I reference the most is Scooby Doo, Where Are You? Everybody loved Scooby Doo. It is one cartoon that truly stands the test of time. My now-17-yr-old daughter loved it so much as a kid that we used it as a measure of time. When she was four, if she asked me how long it would take to get somewhere, and it was an hour away, I would answer, “About three Scooby Doos,” because each episode, without commercials (on DVD) was about 22 minutes. When my daughter was little, if she said she was hungry, I would offer her a “Scooby snack.” Many times, I’ve referred to my daughter and her friends as “meddling kids,” a Scooby reference, for sure. And I’ve even said, “Jinkies!” and “Zoinks!” as exclamations of surprise. But what have I used the most from the show? Scooby Doo’s own, “Ruh-roh,” when I’ve hit a snag. Wanna see some Scooby Doo, Where Are You? Check it out on Amazon here.

So yes, Saturday mornings are still influencing my daily lexicon, and I love it. There were some awesome live-action shows on Saturday mornings too, many made by Sid and Marty Krofft, but that’s a story for another day. It’s fun to feel like a kid again every now and then!

by Kelly Mattei

November is Pancreatic Cancer Awareness Month

***This is a repost from November 2019***

All my friends know it, because they’ve heard it from me for years…since 2006…November is Pancreatic Cancer Awareness Month. What does that mean? To some folks it means nothing. To me, it means a lot. My daddy died eight months after he was diagnosed with this terrible disease. He had been suffering for months, though, without a diagnosis…I’ll get to that in a minute.

When I was in my thirties, I had heard very little about pancreatic cancer. I knew nothing about it…nothing. In 2006, I had been married for six years, and I had a two-year-old daughter. Life was moving along swimmingly, and then my daddy got sick. And it was bad. He was 67 years old when he was diagnosed on February 9, and he died on October 2, three weeks after his 68th birthday…the birthday he declared his happiest ever, because all his family members were there to celebrate with him.

Without getting into the details of his illness, let me tell you this…it never occurred to us he would get pancreatic cancer. There was no history of it in his family, except one aunt, and she was considerably older when she was diagnosed, so we tend to think “we’re all going to die of something.” But when Daddy was diagnosed, it hit us like a ton of bricks. The survival rate is terrible, and after doing some research, we were fully aware of his prognosis, but like Alex Trebek, we tried to have a positive outlook. Without hope, what do you have?!?

Detecting pancreatic cancer is extremely difficult, and that is, in part, why the survival rate is low. My daddy was having symptoms for some time before he was diagnosed, but sometimes, we can’t see the forest for the trees. When he was finally diagnosed, it was too late to do much about it. I’m hoping research funding will help find better, easier ways of detecting it.

There are two things I want you to take away from this…

  • Pancreatic cancer is the third leading cause of cancer-related deaths, but the funding for its research doesn’t match up. There are lots of ways to help. You can donate directly to the Pancreatic Cancer Action Network (PanCan) here. You can host a fundraiser for the organization too. You can walk in a Purple Stride event in your town. You can purchase purple (the color for pancreatic cancer awareness) gear through PanCan here. You can wear purple in memory of someone you know…and tell people why you’re wearing it. You can write to your representatives in Congress, asking them to do more to fund the fight against pancreatic cancer. I recently hosted a fundraiser for Pancreatic Cancer Action Network on Facebook, and I am grateful to all who donated. I was thrilled that so many people donated, and I was overwhelmed by their generosity.
  • Live your life. We never know what will happen. My daddy was always telling us, “Life is not a dress rehearsal.” He encouraged us to live our lives to the fullest…enjoy time with friends and family, see places and things we want to see, give back to the community, etc. Soon after I turned 50, I told my mother (who has since passed away), “I probably only have 20 more years that I can move around really well.” I was looking ahead and thinking it might not be as easy for me to travel when I’m over 70. She looked at me with a sweet smile on her face and said, “When your daddy was your age, he didn’t have that long. [When he was 50, he only had 18 more years ahead of him.] Do the things you want to do.” Perspective. She was right. And so that’s what I’m encouraging you to do. It doesn’t mean you have to go into debt taking a gigantic whirlwind trip, but get busy ticking things off your bucket list.

And while you’re ticking things off your bucket list, wear purple every now and then.

FYI: World Pancreatic Cancer Awareness Day is November 19, 2020. Please wear purple and support the fight.